tag:blogger.com,1999:blog-275151610255619018.post1388621737499416405..comments2023-03-25T06:03:39.605-05:00Comments on The Martin Family and Mito: The Great Flu Shot DebateThe Martin Familyhttp://www.blogger.com/profile/15765198250205565414noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-275151610255619018.post-78831682818041644262012-10-16T20:26:19.867-05:002012-10-16T20:26:19.867-05:00I just now, after one entire year of working with ...I just now, after one entire year of working with Will at 3 R's am reading your blog about your amazing journey with Will and his disease. What a shame. Wish i knew about your blog sooner. Looking through all of your older posts, i started to cry, funny thing is i wasn't crying because of sadness or pity in my heart, i realized i was crying with a smile on my face. The fun memories i have with Will soon outweighed the harsh reality of his disease, thank you for that Lori. The memory of my first day at 3 R's when he so aggressively and randomly approached me yanking at my hair and said "Your hair shiny like my mommys!" (Hahaha such a warm welcoming i'd say) quickly warmed my heart. Thank you for bringing such an incredible person into this world, who has truly made a difference in many peoples lives. Lori, you cant even begin to imagine the role that a little human as tough as Will has played in my (along with many other 3'Rs staff) life. Arriving daily to that school seeing that beautiful boy, so charming and loving is BEYOND AMAZING! A little super hero is what he is. He is a fighter. No matter how hard the fall, he can and will always rise - literally. Will has such an amazing heart, you have really done a wonderful job! To face something this difficult takes great courage and strength - great courage and strength that you carry so naturally. The powerful impact your extraordinary child has had on my life is simply in-explainable. May God always be with you and your entire family, and may he always protect your little man in everything he does. God bless. - With all the love in the world, Ms. Mylly <3Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-275151610255619018.post-36359267805521179892012-10-16T19:09:35.687-05:002012-10-16T19:09:35.687-05:00Beth, Thank you so much for your comment. It reall...Beth, Thank you so much for your comment. It really means a lot to us to have such support. I know we take a risk every day with Will in public, but as you can see, there is no "keeping Will in a bubble" - he wouldn't stand for it and we'd all be pretty miserable. One day that might all change, but he deserves a chance at some fun in life :-) Off to "goop" my hands...The Martin Familyhttps://www.blogger.com/profile/15765198250205565414noreply@blogger.comtag:blogger.com,1999:blog-275151610255619018.post-46816240635037000282012-10-16T18:14:10.368-05:002012-10-16T18:14:10.368-05:00Lori,
I am making wishes that Will gets through t...Lori, <br />I am making wishes that Will gets through this cold and flu season with flying colors. I think the best thing parents can do is not send their kids to school sick. OK, colds are one thing (because they last forever and are just a part of life it seems), but fever, diarrhea, etc. is something different. Missing work is just something us parents need to figure out. It is wrong to knowingly send a child to school sick and I hope no one is doing that, esp. with Will at our school. I know at the school where I work, parents will knowingly dose their child with tylenol to mask the fever and drop them off. WRONG. They are still contagious regardless of whether or not we can see that fever brewing. I also think its good for people to tell you when their little ones are sick with fever so that extra vigilance can be taken. Even when they are kept home once the fever is known, Will could have been exposed and it is good for you to have a heads up to watch extra close. I have opinions about vaccines (I know you know. lol), but would encourage anyone who does get the flushot to ask for a thimerosal free version. It is one of the few shots that still has thimerosal and thimerosal free versions, rather than all of them being thimerosal free by default. I agree with you about the FluMist. I think that is unbelievably irresponsible of the medical community to be putting live virus strains into the public without their consent (which is what these things do). If you get a flumist, PLEASE don't bring your child back to the school. You are making the choice to expose not only your child, but others as well without their consent. I hear you on the hand sanitizer. I BATHE it in at school. Biggest hugs to you as always. I know you don't need my opinion, but I think you are doing a great job of balancing vigilance with "normalcy" by having Will in school and reminding us what we can do to help protect him. We are all lucky to have him at the school and in our lives;) <br />XOXO<br />BBethhttps://www.blogger.com/profile/17898378794706476846noreply@blogger.comtag:blogger.com,1999:blog-275151610255619018.post-85037497623671396092012-10-16T12:21:03.740-05:002012-10-16T12:21:03.740-05:00I agree with most of what you are saying (and have...I agree with most of what you are saying (and have a similar fear of the flu)...but I also know that while most people can safely receive vaccines without any problems, there are some that have severe reactions to them (many of which don't know this until it's too late)!!! I encourage all adults working with Reagan to be vaccinated (NOT with the live attenuated version)...but I myself am not vaccinating my child (Reagan OR her brother). I can't help but think that one of the vaccines Reagan received between birth and 4 months old contributed to her severe seizure disorder (which could have been aggravated by the vaccine because of her mitochondrial disease, which we didn't know she had at the time). Now keep in mind...we are not the general public...we are a small subset of the public with a child who is known to have mitochondrial disease. In general, for the greater good, people should vaccinate. But what happens when you or your child are the one in a million (or 1 in 100,000) that have a negative reaction to vaccines?!?! Your perspective changes a little! (I have a Ph.D.in Immunology...so I certainly know the importance of vaccines!)Reagan Leighhttps://www.blogger.com/profile/10276933188608521229noreply@blogger.com