Thank you from the bottom of our hearts. Gifts of time, treasure and talent come in many different forms and we treasure each one. Many people ask how they can help or where they could make a donation. Currently, we support two organizations, People Against Leigh's Syndrome and the United Mitochondrial Disease Foundation.
People Against Leigh’s Syndrome (PALS) was formed in March 2013 by our friends to support Will and other families like him. PALS seek to build awareness of this unknown Leigh syndrome and support efforts that would lead to discover a treatment or a cure.
Currently, PALS is working in partnership with the Children’s Memorial Hermann Hospital to support the UT Mitochondrial Center of Excellence through a special PALS fund set up at the Memorial Hermann Foundation.
The UT Mitochondrial Center of Excellence is led by Dr. Mary Kay Koenig and provides cutting edge medical care to individuals affected by neurometabolic and mitochondrial disorders. Additionally, Dr. Koenig treats the world’s largest homogenous Leigh syndrome population in the world.
Contributing to the Leigh syndrome clinic has DIRECT and IMMEDIATE impact for Will. The thought of having a doctor and clinic completely dedicated to Leigh syndrome gives us tremendous hope for Will and his quality and length of life.
Check donations should be made out to: "The Memorial Hermann Foundation" and should be mailed to:
The UT Mitochondrial Center of Excellence
Attn: Melissa Knight
6431 Fannin St. MSB 3.151
Houston, Tx 77030
In the subject line you must put: UT Mito / Leigh's Clinic
OR you can donate online at: http://www.memorialhermann.org/give-volunteer/foundation/pals/
Or, if you prefer to contribute to the United Mitochondrial Disease Foundation, we have set up a special fund in Will's honor. Once this fund reaches maturity, we'll be able to provide input on how those funds could be applied to some of the research requests through the UMDF.
Thank you again!