Thursday, November 15, 2012


Will had a decent nights sleep. He had a lot of coughing till about 10:30 p.m. then  I managed to get him to sleep sitting up for a while to help with drainage etc. He woke up coughing during the night a couple of times, but nothing like I thought it was going to be.

This morning he woke up like a new little guy. Smiling, snot was nearly gone. Literally yesterday it was a constant drip. His cough is still here, but it's not like anything it was. I really had no idea what to expect today, and was assuming it wasn't going to be good. I guess when you throw everything except the kitchen sink into the little guy, good things can happen.

Still not in the clear yet, but looking and sounding much better. His energy level is much better. His appetite seems good - he chowed down some pumpkin muffins that a friend dropped off (thank you Christi!) and he helped me make banana bread this morning.

One thing that became crystal clear to me though is this... we need to rethink our pediatrician situation. I mentioned in my previous post that on Tuesday we took him to the pedi. I love the pedi office we go to, everyone is very nice, attempts to be understanding about mito and our doctor is very proactive.

However, they simply don't get how aggressive you have to be with mito. I don't know if I fully understood either until just now. On Tuesday, the temporary pedi that you just get assigned to when you call in sick and the whole place is booked up was nice, pleasant and meant well. She gave me a prescription for antibiotics that I could choose to have filled.

Now granted, it was a full 24 hours later when the immunologist saw him and he had continued to decline and she's a specialist, not a pedi, but she was AGGRESSIVE on treatment. Much more than the pedi. I'm not sure what I'm going to do about it, but I wish there was a pediatrician who worked in the mito clinic. I just realized how much more careful, aggressive and vigilant I should be when it comes to Will being sick. (I often think is that actually possible, but I realized I could be).

I just reread my sentence, there are many people who simply wish they had a mito specialist that practiced in their area, much less some special pediatrician who understands mito. We have a long way to go with mito, but we are so in the right place with Dr. Koenig, Dr. Pacheco and the clinic. For that, I'm very thankful, a girl can dream though right?

One week till turkey day! Looking forward to visiting with family!

1 comment:

  1. hey lady,
    I emailed you regarding a pediatrician you might want to consider. Also, I'm so happy that Will woke up renewed and feeling better!!