Some pretty exciting news from Will's Mito doctor!
"We are happy to announce that the UT Mitochondrial Center of Excellence will be opening the first Leigh syndrome clinic in January 2013. This clinic will be held on the second Friday of every month and will be dedicated to the care and research of patients diagnosed with or suspected of having Leigh syndrome."
This is incredibly awesome news for us as Will has Leigh's disease. In no way am I "downgrading" other mito diseases - many of them are fatal - but Leigh's is as well. To have a time to be in the clinic with only other Leigh's patients is going to be awesome.
It's a good opportunity for the doctor to find commonalities, issues and perhaps even better treatment options if all the patients come in during the same time period.