After consulting with Dr. Koenig’s nurse and Dr. Koenig we headed for the ER Monday morning. We were admitted afternoon and stayed till late Tuesday. It was the best thing for Will – fluid/IV, rest, and more aggressive meds.
Essentially, we had ear tubes put in when Will was 9 months old after multiple, back to back double ear infections. Initially the infection was so bad that we had to go weekly for about four weeks to get his ears / tubes drained – side bar story, that was not fun. They had to strap in to something that looked like a straight jacket and then used what looked like an acupuncture needle down into his ear to drain it out. So, fast forward to almost 25 months later and the tubes are no longer in place. That’s normal. They are supposed to fall out.
So here we are… a mess of ear infections with no tubes, a resistance to our “favorite” antibiotic augmenten and our second hospital visit. That means we are going to get tubes put back in, which I’m a huge fan of. This means the infection will drain out of his ears instead of sitting in his ears growing. We have an appointment set up for Friday to do a check in with the pedi to make sure this new antibiotic is working then another appointment with an ENT to discuss tubes.
So, we need to get all this crud out and Will healthy so that we can do tubes asap.
The hospital visit was overall good. Will did great and so did Neil. I had a big huge project due by Monday at 5 p.m. and had to go in to finish it. About 3 p.m. my manager was able to pick it up and get it out the door. So, I raced over to the ER to meet up Will and Neil. It sounds like the ER was pretty traumatic… they had to get about five nurses to hold Will down to do an artery blood draw from both his wrists, then drew six vials of blood, put in the IV and finally he got a break. It sounded like he was crying for me the whole time as well which of course makes me feel super guilty, sad and overall sucky. Plus, Neil also is sick. Wonder where he got it from…
If you’ve read the blog at all, you probably understand that mito is a messy complicated disease. Well, just because doctors go to medical school doesn’t mean that they understand it either. Case in point, the ENT that came into the room at 10:30 p.m. and turned on the light, actually two lights. Yes, 10:30 p.m. well after the time Will and I both have gone to bed. I got the vibe that essentially didn’t understand why we were even admitted. And left the conversation with the commentary of, so, basically he has a cold and an ear infection? Yup, you a-hole. A cold. A cold that could leave a big ugly lesion on his brain and tomorrow he could wake up and not be able to walk. So, screw you.
I mentioned it to the awesome on-call doctor and she said, “yes, he was confused. Clearly he didn’t listen to anything I said before he went in to the room.” At least one more person was educated to some extent about mito and maybe the next person will have a different experience.
I shouldn’t whine because really this was an “easy “ER trip. It’s just Neil is sick. Since this is technically "my blog" I can lovingly say that his hacking cough is driving me (and him) bonkers, Will is sick, I’m tired, Will hates this new medicine – he has to take 10 MLs of it orally – and the past two nights he has gagged and puked up a little bit. He had a nasty loose stool all over the car seat. I’m behind on a lot of stuff – appointments for Will, getting the rug cleaned that our dog smeared poop all over. It’s been sitting on the porch for like a month. As the super annoying MTV character Snooki says, “waaaa”. I just want the snot to go away.
On the positive side, Will has been a real sweetheart. Just as sweet and loveable as can be. Children’s Memorial Hermann is a teaching hospital so whenever a doctor comes in, they bring about 20 more in. Since we were in isolation everyone had to wear masks and gowns. It didn’t even phase him. He just took it in stride and told everyone hi and bye and thank you.
The child life specialists at the hospital brought in some fun toys - Will kept pushing this dog around saying, actually YELLING, I lovvveee my doggie. It kept him occupied for a long time. Not much else you can do hooked up to the IV and in isolation.