Hard to believe it's been three months since we found out Will has Leigh's Disease. Neil pointed out to me this morning that he thinks he has more gray hair. I have noticed my hair coloring appointments increasing in frequency myself. :-)
We've accomplished a lot in three months, but it feels like we have such a long road ahead. Ok, we DO have a long road ahead! :-)
Let's celebrate today some good wins though:
-Medicaid is almost signed sealed and delivered
-We researched, met with various doctors and found out we can have more biological kids
-Will hasn't been sick, except that one time with vomitting. Knock on wood. Seriously, do it right now.
-We were accepted to Stanford, went for the baseline testing and are on EPI-743
-Countless hours of therapy with Mr. George, Ms. Risa and Ms. Melissa. Need we forget the "24/7" therapy I try and do at home continue to improve his walking and stability.
-So much therapy that he's able to chew crackers now!
-Raised money and awareness for this disease
-Neil and I don't cry every day