Thursday, November 3, 2011

Health update

Last week, Neil took Will to an immunologist to get his flu shot and do a baseline study on where his immune system is at today. The outcome is that we'll need to get his blood work done and schedule a sleep study to get a baseline and make sure there aren't any sleep apnea problems. We don't have any reason to think that there is something wrong, but better to check. So, something else to schedule.

Our next big health adventure is the return trip to Stanford for the EPI-743 drug study at the end of November.

Will ate a cheese burger this weekend! It's a place I never thought we'd get. We've given Will pieces of a cheeseburger before, but this time it was simply cut down the middle, peeled some of the bread off and off he went. Not even a small gag! So proud.

Physically, Will continues to excel. His balance is getting better and he is taking stairs and steps a little bit better too. We are obviously letting him get a little more adventurous based on the skinned knee and bruises. In fact, big exciting moment!!! He went up and down the front porch stairs all by himself. This is a huge win!

Knock on wood, we haven't had any green snot in a long time. Did you get your flu shot yet? I've heard it's going to be a mild winter in Houston and hopefully that means a mild flu season.

Stay healthy and happy!


  1. OMG, that second to last picture is the cutest picture EVER. what a nugget.

  2. So glad to hear he's doing so well!!! Adorable pictures!!! XOXO

  3. this is great news Lori (his milestones eating the cheeseburger and going up and down the front porch stairs!) so glad that you're keeping up with the blog.

    have your mum and sisters heard anything back?? praying for better than expected results...